By Nikita Chadha Well, it’s been one hell of a week—a real rollercoaster. Last week, the video that I was invited to film for the parliamentary debate on PCOS & Endometriosis went live – the days that followed after felt like a downward spiral of insecurity and doubt. I think this comes as part of Continue Reading
Navigating reproductive health issues as a lesbian couple
By Kiran Chalke and Hayle Davies As a lesbian couple with a whole list of reproductive health issues, including endometriosis, PCOS and Fibroids, we have faced a lot of barriers to accessing appropriate gynaecological care. This includes having to constantly prove that our health issues are severe enough to warrant treatment and having to always Continue Reading
Let Cysters Discover- Changing Narrative
I am Nirali Jain, I am currently pursuing my M.A in Service Design from the University of Arts, London. As part of my thesis project, I am working on a project to explore how we can better support women suffering from PCOS with better services and knowledge to empower them to take charge of their own body and health. My Continue Reading
Transgender Men’s Experience of Living with Endometriosis – Study
– Cheryl Eder One in ten people have endometriosis, a disease that is painful and chronic having a destructive effect on daily life for those who live with this disease. I am one in ten. I started researching endometriosis as part of my endometriosis diagnosis and my wanting to know more about how to live Continue Reading
Ever wondered why your healthcare provider presses on your belly during your physical examination?
Dr Sneha Battin Your abdomen is home to a lot of vital organs: the stomach, the intestines, the colon, liver, spleen, gallbladder, pancreas, uterus, fallopian tubes, ovaries, kidneys, uterus, bladder, and many blood vessels. Clinicians are trained to examine your body with their hands to find the cause of your distress. In women, pressing down Continue Reading
My Life with Vaginismus
By Lorna Meehan My Hypnotherapist explained it to me like this: When your body says ‘no’ and you ignore it (and don’t beat yourself up about that, life confuses you sometimes), it starts making decisions for you, to protect you from that which it perceives to be threatening. It is hard wired for survival. It’s Continue Reading
Be Womb Cancer Aware.
Written by Kaz Molloy On 23rd Dec 2009 I was diagnosed with womb cancer. The diagnosis came out of the blue as I was being seen by a gynaecologist for fibroids and an MRI scan to determine the size of them had picked up the cancer. I had never heard of “endometrial carcinoma” and actually Continue Reading
Self love in isolation
So, Everyone has become a baker during this lockdown, and whilst we LOVE a good cake.. it doesn’t quite hit the spot, if you know what we mean. We aren’t bakers, more of a pleasure seeker, the cake doesn’t quite do it for us. But since we are in an pandemic due to Covid-19, we Continue Reading
Navigating Ramadan with a Chronic Illness
Assalamo-alaikum and hi to you all My name is Diyanah knows as Dee to a lot of people. I am a 36-year-old British Pakistani. I suffer with PCOS and other health issues and use my experiences to support others. Fasting with a chronic health condition It has come to that time of the year again Continue Reading
Most Likely to Be Diagnosed, and Most Likely to Be Left out the Spotlight
Most Likely to Be Diagnosed & Most Likely to Be Left out the Spotlight Hiding in Plain Sight – Asian Women and Endometriosis by Nikita Aashi Chadha *This article has been edited at a later date as my Endometriosis definitions were incorrect and outdated* Yes, this condition is so underrepresented and underresearched that most explanations Continue Reading